Tag: World Lymphoma Awareness Day

In the wise words of the old adage, “It takes a village…” The same holds true in the fierce battle against cancer. While one body might endure the torment, the collective beacon of hope, coupled with boundless support from loved ones, plays a pivotal role on the emotional and mental fronts.

Continuing to show solidarity, the community comes together to honor the survivors, warriors, and their families for this year’s World Lymphoma and Blood Cancer Awareness Month. 

Blood cancer is caused by mutations in the DNA within blood cells, with Lymphoma, Leukemia, and Myeloma being the most common types of blood cancers. According to the Global Cancer Observatory of the World Health Organization, in the Philippines, there are around 5,000 cases of Lymphoma, 6,000 cases of Leukemia, and 800 cases of Myeloma diagnosed every year. That is almost 12,000 Filipinos a year being diagnosed with blood cancer. More than just a statistic, it also means 12,000 families impacted, 12,000 lives disrupted, and 12,000 battles for a better tomorrow. 

Unknown to many, Lymphoma is a cancer that starts in the immune system’s infection-fighting cells called lymphocytes. The lymph nodes, spleen, thymus, bone marrow, and other areas of the body contain these cells, and Lymphoma leads lymphocytes to change and increase out of control. Common symptoms include enlarged lymph nodes, chills, weight loss, fatigue– all of which are more likely to be caused by, or confused with other conditions, which is why getting checked by a doctor is important for proper diagnosis, and education about blood cancers needs to be reinforced. Lymphoma Philippines aims to make this happen.

Lymphoma Philippines is a non-profit organization for Lymphoma patients, survivors, and caregivers aiming to spread awareness and education on Lymphoma, and connect the community through medically-approved Lymphoma-related campaigns in the country. The lack of information is what inspired cancer survivor Jheric Delos Angeles, after his recovery from Stage 4 Anaplastic Large Cell Lymphoma, and his wife Anna Tapel-Delos Angeles to create a community of Filipino patients and their family members in order to educate more people and provide much needed support to those in need, including fighting for better healthcare. 

As part of these efforts, Jheric and Anna unveil The LymphomaQR Project, an initiative that aims to make information accessible to the general public through an easy-to-use and familiar tool. With the goal of helping Filipinos have access to relevant information all throughout their Lymphoma journey, the LymphomaQR chatbot hopes to lessen the burden that they face. With LymphomaQR, anyone can:

• Know more about Lymphoma, its symptoms
• Possible treatment options 
• Available financial assistance programs 

“We looked back at our personal journey in the fight against Lymphoma, and saw the gaps to be filled– one of which is quick access to reliable information. With LymphomaQR, we’re simply taking queues from technological trends readily accepted by people to be able to make the experience easier for them, lessening the burden in whatever way we can,” says Lymphoma Philippines co-founder Jheric Delos Angeles.

Jheric and Anna also recognize that there is a bigger battle to be fought and more people willing to support the cause, all united by blood. In line with this, Lymphoma Philippines officially launches the Blood Cancer Alliance of the Philippines this World Lymphoma Awareness Month. Joining forces with EPCALM Adult Leukemia Foundation of the Philippines, Kanser sa Adolescents and Young Adults Community / KAYA Community, The Carewell Community Foundation, Touched by Max Inc, Philippine Alliance of Patient Organizations, UST Hospital Hematology Department, Philippine College of Hematology and Transfusion Medicine, and Takeda Healthcare Philippines Inc., the alliance aims to shed light on the issues faced by Filipino blood cancer patients, increase efficiency to access information and support, and overall improve the experience and outcomes of all those living with blood cancer.

“We can never truly know the gravity of the battle of our survivors, warriors, and their families. Nevertheless, let us continue offering our support even by simply clicking the share button. It only takes a second. A nugget of vital information when shared with many can make a difference. Let’s make it happen with the help of Lymphoma Philippines and the Blood Cancer Alliance of the Philippines,” urges Dr. Clarito Cairo, Department of Health, Disease Prevention and Control Management Bureau, Cancer Control Division, Program Manager. “We at the Department of Health thank you for this, and lend our full support.”

For more information, you may visit Lymphoma Philippines on Facebook (facebook.com/LymphomaPH) or its website at lymphomaphilippines.com.

If the pandemic has taught the world a lesson or two, it is the importance of cherishing the gift of good health, and enjoying life unrestricted. It has put things into perspective, and the fear of getting ill is even more realized. Indeed, the reality of COVID-19 terrified the world, but there are those who have lived a reality like this much longer– cancer warriors and survivors.

Lymphoma is a cancer that starts in the immune system’s infection-fighting cells called lymphocytes. The lymph nodes, spleen, thymus, bone marrow, and other areas of the body contain these cells, and Lymphoma leads lymphocytes to change and increase out of control. Common symptoms include enlarged lymph nodes, chills, weight loss, fatigue– all of which are more likely to be caused by other conditions, such as an infection, which is why getting checked by a doctor is important for proper diagnosis. 

It is one of the top 15 cancers in the Philippines, affecting around 11,000 Filipinos every year. Yet with lack of awareness, authorities estimate a larger number of patients that are left undiagnosed. 

“Lymphoma exists”, Jeanne, a Lymphoma cancer survivor, stresses, “For someone who was diagnosed with Lymphoma and know nothing about the disease…if people knew more about this cancer that can actually affect even the younger ones, maybe we could have been more aware of our health (and) the symptoms that Lymphoma can do to our body.”

Such is the mission of Lymphoma Philippines, a non-profit organization for Lymphoma patients, survivors, and caregivers aiming to spread awareness on medically-approved Lymphoma-related campaigns in the country. The lack of information is what inspired cancer survivor Jheric Delos Angeles and his wife Anna Tapel-Delos Angeles to create a community of Filipino patients and their family members in order to educate more people and provide much needed support to those in need, including fighting for better healthcare. 

Rhiz, a Lymphoma cancer patient, shares her experience living with the disease amidst the pandemic, “It’s very hard. The agony is double. During the pandemic, going to the hospital was difficult and scary for cancer patients like me. As it is, we cannot afford to get COVID.”

Christine, a Lymphoma patient caregiver, echoes Rhiz’s sentiments regarding hospital visits. On top of that, their income was cut off for a time during the lockdown and they had to rely on their savings to continue medication.

While Lymphoma is considered to be a curable cancer if diagnosed early, access to treatment is a challenge as costs related to the disease can range from one million pesos to three and a half million pesos depending on the hospital and treatment protocol. 

Recognizing these challenges, Lymphoma Philippines hopes to continue spreading information and possibly save lives. As part of its efforts, the organization along with The Carewell Community Foundation, EPCALM, KAYA, and The Philippine Cancer Society, also in partnership with Takeda Healthcare Philippines, held a public online event to mark the World Lymphoma Awareness Day, and shared practical information beneficial to Filipino Lymphoma patients and their families. This includes: 

●      Mental wellness advice for patients and their loved ones

●      A private Facebook group for patients and their loved ones where they can get information and support from each other

●      Patient navigation that helps patients in their journey from diagnosis to post-treatment and connects them with the right agencies and groups

●      Emotional support groups in partnership with Kanser sa Adolescents and Young Adults (KAYA) and The Carewell Community Foundation

●      Social work services that can assist patients in their journey

“It is an unimaginably difficult journey for patients and their loved ones living with cancer. Having gone through it myself, a strong support system is crucial in the journey and we at Lymphoma Philippines are committed to lending help however possible,” says Lymphoma Philippines co-founder Jheric Delos Angeles. 

For more information, you may visit Lymphoma Philippines on Facebook (facebook.com/LymphomaPH) or its website at lymphomaphilippines.com.